Expand the Role of Patients, the True Experts, in Neuromuscular Disease Research, Concludes International Workshop

Shared decision-making seen as an important instrument to obtain better research results and gain support and acceptance from the wider public, according to a new position paper published in JND

February 6, 2019 - Amsterdam, NL – The old-fashioned paternalistic relationship between doctors and patients has gradually evolved into a more collaborative one in the era of patient-centered medicine. Shared decision-making (SDM), in which doctors and patients jointly decide on treatment or care, has emerged as a gold standard model of healthcare. Yet considerably less attention has been given to obtaining the patient’s perspective on neuromuscular research on such matters as research objectives, study design, or even consent. A position paper in the Journal of Neuromuscular Diseases describes conclusions reached at an international workshop that focused on finding creative solutions to integrate and enhance the patient's point of view in neuromuscular research. More...

February 6, 2019

Yoga Regimen Reduces Severity of Rheumatoid Arthritis Symptoms, Alleviates Depression, and Improves Patient Quality of Life

New research in RNN supports adding yoga as an adjunctive therapy to treat this chronic inflammatory disease

February 5, 2019 - Amsterdam, NL – According a study published in Restorative Neurology and Neuroscience, eight weeks of intensive yoga practice significantly decreases the severity of physical and psychological symptoms in patients with active rheumatoid arthritis (RA), a debilitating chronic auto-immune inflammatory disease. Marked improvements were seen in the levels of certain inflammatory biomarkers and assessments of functional status and disease activity in patients studied, demonstrating yoga’s promotive, preventive, curative, and rehabilitative potential for achieving optimal health. More...

February 5, 2019

Experts Propose Revising the Criteria for Diagnosis of Parkinson’s Disease with a View Towards Earlier Treatment and Prevention

What is known about the “prodromal” phase of Parkinson’s disease and how measurement and better understanding may enable earlier treatment, and even prevention, by the year 2040 are explored in a special issue to JPD

February 5, 2019 - Amsterdam, NL – In the past 25 years, it has become clear that some symptoms of Parkinson's disease (PD) occur decades before the development of motor symptoms and clinical diagnosis, and that monitoring these emerging symptoms may provide important insights into the origin and development of the disease. Understanding this "prodromal" phase, along with the development of new treatments, may enable earlier treatment to prevent the disease from developing, according to experts writing in a supplement to the Journal of Parkinson's Disease. More...

February 5, 2019

The Search for Environmental Causes of Parkinson’s Disease Moves Forward

Scientists evaluate promising research hypotheses for understanding environmental triggers in Parkinson’s disease and propose future directions for research

January 31, 2019 - Amsterdam, NL – Environmental factors are widely believed to play a key role in the development of Parkinson's disease (PD), but little is known about specific environmental triggers. Writing in a supplement to the Journal of Parkinson's Disease, scientists review novel research hypotheses and approaches that may help better define the role of environment in the development of PD, especially before a diagnosis can be made based on the characteristic motor dysfunction for which PD is known. More...

January 31, 2019